A school has excluded a dying girl after her specialised chair was deemed a “fire hazard”, her devastated mum says.
Emma Fraser-Thomson, 11, needs specialised seating due to a growth disorder, but her chair can cause problems getting around the school.
Her mum, Lorraine Thomson, from Alva in Clackmannanshire, Scotland, told the Daily Record she doesn’t know how much time she has left with Emma and she wants to make every moment count.
Emma has cerebral palsy, vision impairment and Soto syndrome, a rare genetic disorder which causes overgrowth, learning disabilities and mental development issues.
The girl developed a sickness bug in April 2017 that “annihilated her body and mind” and developed into a form of pneumonia, said her mum, a full-time carer.
She has recurring chest infections and needs antibiotics 14 days out of 21.
Lorraine said Lochies special needs primary school in Alloa called on Friday to tell her that Emma can no longer attend because her chair is a fire hazard.
The mum had to choose whether to send Emma to Alloa Academy, home schooling or residential schooling.
She claims Alloa Academy would not meet her daughter’s needs and would separate her from her peers.
Lorraine wanted to send her daughter to Castleview Primary School, a 16-minute drive from home, but neighbouring Stirling Council refused to allow the girl to attend.
The mum said: “I don’t know how much longer I’ve got with Emma.
It’s her human right to be educated in a place that meets her needs.”
She added: “Castleview is modernised in a way that would meet Emma’s needs.
“I’m not asking for Emma to go for educational needs, at this stage it’s for her social needs and overall wellbeing.”
Lorraine said the “only other solution” is part-time residential schooling in Lanark, which is 40 miles from their home.
She said: “Surely my child, who has limited time to live, should not have to choose between living at home with her loving family and isolated from her peers or living across the other side of the country with unknown people but the benefit for her mental health of being with peers?”
Scottish Parliament member Keith Brown, who is backing the family, said: “I have made representations to Clackmannanshire and Stirling councils to try to achieve the best possible outcomes for Emma.”
Clackmannanshire Council said: “We are aware of Emma’s circumstances, which are complex for many reasons. She is receiving home education and has been offered a place at Alloa Academy as an alternative.”
Stirling Council said: “We would not respond to this as it is not a Stirling Council story.”